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2019-05-16 02:13:42 UTC 2019-05-16 02:13 UTC

josh:  Hello again -- hope all is well

I caught up with my radiation oncologist today and got a little more information. The group of doctors considers the GBM to be "disseminated", which I'm reading about now -- basically the tumors are far apart and not connected in any visible way. The dissemination is really rapid. As I mentioned, the second tumor appeared about three and a half months after the first, and what we're supposing is the third tumor appeared more like three and a half weeks after the second.

The team doesn't believe any additional radiation treatment -- whether the traditional type or gamma knife -- will help the situation, and that it will merely do damage. I believe they're thinking the same thing for regular surgery. We talked about the whack-a-mole game where you keep hitting the critters that pop up, but more of them pop up in other places (and when you're getting hit in the head, yes, it hurts :) ).

I asked her if there had been more time between the appearance of the tumors, say a year instead of a couple of months (or weeks) whether that would influence the analysis, and she said yes. I remember that my neuro oncologist mentioned that my cancer was more aggressive than they had seen before -- I suppose that's something, since I'm going to a well renowned cancer hospital.

I'll be meeting with another oncologist at a nearby hospital and looking for other alternatives. Wish me luck!

I feel great, and today was a really good day, I guess with the exception of the topic of my discussion. I recommend that you don't look up disseminated glioblastoma, but if you do, I have to say that the survival time seems completely unreal to me, and I have to think that I'll be around much longer. But I'm not getting cocky -- bravado doesn't really work with GBM.

In many ways, (and except for the times when I take chemo pills) I feel better physically now than I ever have, and I'm in better shape -- strange position to consider.

I'm choosing to have another great day today. Hope you have one too.

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